Stigma Fighter: Karen S.

If you decide to read this, and I hope some of you do, please know that it is something I need to articulate, but that it is not addressed to you. I don’t write this to imply my friends are wanting in their attention, that I need you to solve this for me; nor do I write this for attention or sympathy. Please also don’t feel that you have to respond – I would welcome thoughts and support of course, but again, that isn’t my aim here; I’m not trying to manipulate you for an outpouring of care. My aim is to find some words for how I feel, to maybe alleviate some of the ache I have inside, to lessen some of its power over me. I tell my students that writing isn’t complete, doesn’t have meaning, until it has an audience, until it is read, and so I put this out into the world.

I’ve come to realize that loneliness is the one true absolute in my life and it, along with depression, defines my life. I have always prided myself on being alone – that it is a choice I made not a default position – and I still believe that, but something else is at work now, truthfully probably at work for a long, long time, to the point that I can’t see beyond this, that it envelops me in darkness. And that darkness combines with the depression that is always on a slow boil on the back burner – together they make quite the black hole of nothingness. I was going to write numbness – and that is a good descriptor – but numbness so often suggests a lack of feeling and what I feel is the overwhelming pain of being alone.

I tell myself you can fix this – call someone up for coffee, go to the book launch you were invited to last night – but thoughts about fixes are easy, action is a whole other thing altogether. And I’m caught in an awful paradox: the pain of loneliness is killing me but at the same time I mostly don’t want to be around other people; I long to have the people closest to me nearby but when they are I either feel put upon and crowded or even more lonely, which I know doesn’t make sense but it is the only way I can describe it. And if this is the result when it is people I love and/or care for, how can I change this condition of my life.

Therapy you are thinking – therapy I think, but I haven’t found a home in therapy for quite a while now. I’ve had some referrals, tried some counselling, group settings, a psychiatrist or two or three or four (I’ve lost count); since I graduated from UBC and thus lost my access to student mental health services and the great psychiatrist I saw there, I haven’t had the outlet and the feedback that seems necessary in my life in general, and definitely as I articulate these thoughts. My GP is working on another referral, so fingers crossed.

I am scared of this loneliness, scared of what it makes me think about, scared of how the day, the week, the month, the year, my life goes on. I no longer have alone time, I only have loneliness time which I try to cope with or manage, but in doing so I’ve lost connection to some of the things I loved about being alone – reading, for example. I spend so much time trying to stop my brain, to escape into mindlessness – tv, candy crush, etc. – because when I don’t – when I read thoughtful ideas, listen to music or the CBC – my mind races to places that are so hard to deal with, that paralyze me. I dread my drive to work because although I have to pay attention to the road, it is a time that my brain starts in on me and it is such a struggle then to get myself to work, in a space to teach. The shower too is a time and space I dread.

I just wrote that I’ve lost the connection to some of the things I loved about being alone; in fact, I think I’ve lost the connection to me. I really don’t know who I am anymore, don’t know if there is a me anymore. There is only the loneliness and depression. I can hear the therapists I’ve worked with over the last 30+ years cringing at this, but it is true. I first started to struggle with this in my mid teens, at least outwardly, and I would suggest that it started even earlier. Has there ever been a me that didn’t struggle with the emptiness and pain inside? Who is she? where did she go? You (the therapists) tell me to use the inner person, the core self, to define me, to find strength in. There is no inner person, there is only a black hole of pain and nothingness that sucks all the energy I have into it. Any little bit of energy that remains is quickly expended in just existing, going about the pain of living.

During the work week the loneliness is partially pushed to the side in the routine of work, but here we are again, another Sunday afternoon in which I’m utterly filled with loneliness – a filling that empties and overwhelms.


KarenSStigma Karen is a contract faculty member of the Department of English at the University of the Fraser Valley. She was first diagnosed with depression at 17 and still struggles today, at 52.

Stigma Fighter: Cynthia F.

Where does it really begin? That’s the million-dollar question. I’m pretty sure the doctors and therapists consider the beginning as the date of diagnosis – which was September 2005. But then some doctors reflect back to my teen years (when I had a rather manic episode) as the origin of the illness. But then again, still, there was that 1997 depression after my baby died inside me (what they call a missed abortion). And then, finally, there is the beginning that really changed my life. That began in the Spring of 2004, a year and a half before diagnosis – a year and half before meds.

The two years between 2004 and 2006 were blissful and exciting – for me anyway – but certainly not for those around me. I was manic for two years. True to the textbook. My children were young: 5 and 10, so they went to bed early. Once I had them in bed and tucked I proceeded to get ready to go out. Fix my hair, freshen my make-up, maybe change my clothes. I bid my husband good-bye and went off to meet one of my two best friends at the time (that’s a story in itself). I remember a wild trip to New York City where I proceeded to buy $600 in books, struggled to get them into my suitcase, and underwent a personal body inspection by security trying to get back into Canada. There was so much erratic behaviour and so many spending sprees.

My one friend, I’ll call her Susan, and I were writing a book together. It was a non-fiction textbook and was later published and is still used in colleges across Canada. Most nights I would meet Susan – we worked hard on the book. However, as my mania grew so too did my inability to predictably work on it. Sometimes the mania caused me to be incredibly creative and driven, but other times my mind raced from one thought to another so quickly I could not focus. Then the down days started. I was rapid-cycling, actually ultra-rapid-cycling (cycling from day to day). On the down days there was nothing I could do to work on the book. Some days I didn’t even get dressed or leave the house.

I started to miss days at work. It was a fabulous job, and I loved it. It was the perfect job for someone who was manic. It was full of responsibility and authority and I ate it up. The work itself was fast-paced and high volume. And I had all the energy I needed to keep up. I was completely on my game and the office ran like a charm. Then, again, came the down days. I couldn’t focus at work. All I could think about was doom and gloom. I was exhausted. I closed the door to my office and avoided contact with everyone. I barely managed to complete the key tasks of my job. I couldn’t think clearly and it was a challenge to make decisions. Concentrating was impossible. And I just felt so sad. The worst came when I actually started crying at my desk. My assistant, obviously aware of my state of mind, went and got my supervisor. Lucky for me, my supervisor was a caring and compassionate woman, eager to help however she could. She talked me out of my tears and sent me home. That was not the last time that happened. The cycling from mania to depression continued. Somehow I managed to do the bare bones of my job.

On my “good” days, as I would call them, but really they were just pure mania, I was on top of the world and could do no wrong. I was always busy and full of energy. Because of the mania my mind would race and often be confused. My judgment was definitely impaired. My evenings with Susan began to get shorter as my ability to function decreased. After brief sessions with Susan, I would skip out and meet up with another friend, I’ll call Lori. Lori and I would hang out at the local coffee shop – sitting in our car, drinking tea, listening to music and smoking up. We talked and laughed for hours. Sometimes we would take the car out for joy rides. I would drive fast and recklessly – but it was fun to both of us because of the state we were in. Lori was a lot of fun and she fed into my mania. She encouraged me to come out at night and drive around. I was an easy target. As time progressed, I spent less and less time working with Susan and more and more time hanging out with Lori.

Susan became concerned with me and had started doing some research on the computer about me. She was typing in words like “mood,” “up,” “down,” etc. And what she often saw was something called Manic Depression, today referred to as Bipolar Disorder. The next time I saw Susan she brought this up to me. I read the material she had researched and had to agree that it sounded like me. To cut to the chase, Susan and I were seated in my doctor’s office where I was referred to a psychiatrist. My first psychiatrist. I’ve lost count of how many I’ve had. This was in September of 2005 and the psychiatrist diagnosed me with Bipolar Disorder, started me on a medication regime, and wrote me off work.

It became time to write the edits for the book – I couldn’t handle that. I was either too high or too low. There was no in between. I was ill. Susan did the edits without me and the book eventually proceeded to publication. I continued to party with Lori. The meds took the edge off but didn’t really fix anything. I ended up back at work – on again, off again. And the med changes and adjustments were frequent. I could hardly keep up with them. I was preoccupied with sexuality. I flirted with everyone – especially those that flirted back. My looks changed. My clothes changed. I changed.

Let’s say I was inappropriate at work. My behaviour was off the wall, and eventually came back to bite me. I escaped with emotional bruises and ended up on long-term disability. That was a gift because I was headed toward losing my job. And that would have had a huge financial impact on my family. I remain on disability today.

Then an awful thing happened – what ended up being a huge trigger. Susan e-mailed me that I hadn’t pulled my weight with the book – but worst of all, that she couldn’t be my friend any more. Susan and I had been friends for 17 years. We were best friends. The kind of friends who sat beside each other on a bed and independently worked away, yet were together. We walked into each other’s houses without knocking, and we spoke several times a day on the phone. Susan was a huge part of my life. She left. I crashed. Huge. My lifestyle changed drastically. I went to bed and stayed there for two years. It was the deepest depression I’ve ever had.

By now, my children were 8 and 13 – a little more self-sufficient. My husband had to pick up the pieces of managing the house and caring for the kids. They would bring me food to my bed. The kids would sit and read with me. The bathroom is an ensuite so I didn’t have to leave my room for that. I only had to leave to go to the kitchen, and that wasn’t very often. Somewhere along the way I lost Lori too. I don’t remember what happened there, (memory is a huge issue) other than she couldn’t handle my illness. I was also devastated about that. I lost most of my friends. It was a sad time. I slept about 18 hours a day. When I was awake, all I did was listen to music. It seemed to numb the pain.

After one psychiatrist closed her practice, and we were travelling three hours to another, my husband finally found me a new psychiatrist – actually the head of psychiatry at our local hospital. Quite the coup. He was a life-saver. He convinced me to stop self-medicating. He started me on a new med cocktail and saw me weekly. Not only did he prescribe medication to me but he counseled me as well. He was a real gem. He tweaked the meds up and down, adding new ones from time to time, until eventually – about five years later – we had fallen upon a cocktail that actually worked.

I was dressing, bathing, eating, and getting out of my room. Then I actually started leaving the house. Over the next year my confidence grew, I lost weight and started writing again. I created a blog where I write about bipolar disorder. I have written my first fiction novella and hope to have it published. My psychiatrist has moved away, but he left me in the hands of another, one who seems equally thorough and qualified. I know how fortunate I am for that. I also know how lucky I am to have such a supportive family. It’s been a lot of hard work. I’m left with some cognitive impairments, anxiety, and I still have some pretty dark days, but I think I’ve made it through to the other side. I’m starting to see a better life ahead. A better life with Bipolar Disorder.

cynthiaforgetCynthia Forget was diagnosed with Bipolar Disorder in 2005. Since then she has been through a myriad of experiences and treatments and ten years later has finally fallen into a stable state – as stable as one can be with Bipolar Disorder. In March of 2014, she began a blog entitled Real Life with Bipolar Disorder. The purpose of her blog is to bring awareness to Bipolar Disorder and support to those who suffer from it. She has written over 25 blogs on a variety of topics relating to Bipolar Disorder. Through Facebook, Twitter, and her on-line blog, she is a strong advocate for those with Bipolar Disorder.

You can find Cynthia on FacebookTwitter, and Pinterest. She blogs at Real Life with Bipolar.

Stigma Fighter: Brian K.

In October of 2004, I was the first police officer on the scene of a fatal motor vehicle collision. Within the first few minutes of being at the scene, I quickly discovered that the seriously injured driver was a close friend. He died in my arms as I was performing CPR on him. I also had the responsibility of telling his wife, who was just about to give birth to their first child, that he had died and the circumstances. It was the worst night of my career.

In the days immediately following, I coped the way that many first responders cope with stress and trauma – with alcohol and a strong desire to bury the experience. I didn’t get any after-care at the time, didn’t explore the experience and the feelings it created, didn’t let anyone know what I was going through. I told myself it was part of the job, something that a cop should be able to deal with, and locked the demon away in a cage way in the back of my brain.

Basically, I did everything wrong.

Over the next few years, I buried myself in work, striving for promotions and accolades and seeking acceptance and redemption through success at work. At home, however, I systematically pushed away my family and friends, creating a bubble around myself, living with the fear, the guilt, the anger, and the despair. I cut myself off from the people who were in the best position to help me. At work I was cool, calm, put together. At home, I lost my temper, raised my voice, and was a less than ideal dad and husband.

I equate it to masks. At work, I had one mask on that hid everything nice and neat and gave everyone the impression that I was in control. At home, my real face came out, and it was an ugly, hurtful thing. It tears at my heart that my sons will have the memory of their dad during those years as being detached, angry, and isolated. They deserved better and I have done everything I can to explain to them what PTSD is and what it did to me, and to repair my relationship with them and my wife.

And on that topic….my wife would have had every reason and right to leave me several times. But she didn’t. She stuck with me, picked me up when I was down, kicked my ass when I needed it, and came through the hellish days with me. We’ve grown closer than we ever have been and our marriage has become stronger because of the tests we faced together.

For a while, I turned to alcohol on a daily basis to cope. It was so much easier than dealing with the blackness, and I finally got into a spiral that ended with a complete breakdown about 4 years ago. I was done physically, emotionally, spiritually, and mentally.

I finally admitted that I had a problem and began seeing an excellent psychologist who specialized in PTSD treatment for first responders / military. I let the walls fall down between myself and my friends and family, which let me start to make amends and rebuild relationships I had come close to destroying.

I fought the battle for workmen’s compensation and got it. I rebuilt my reputation at work and ‘came out of the closet’ about my PTSD.  I became a very vocal advocate at my workplace and began to help guide other officers through their own struggles with trauma and rebuilding.

Now, a few years later, I’m in a very good place. I’ve created Project Healthy Heroes, which has allowed me to start speaking about my experiences and training first responders and civilians about PTSD, resiliency, and getting through trauma with your mind and body intact; and to work with first responders to heal from their PTSD naturally through taking care of their bodies and letting the mind follow. I even made a video about my battle that went quasi-viral on FB!

http://www.youtube.com/watch?v=KAl5PIDBdvQ&sns=em

What I want people to take away from my story is that there IS life after a PTSD diagnosis, if you’re willing to fight for it. You can continue to do the job you love, you can rebuild your ties to family and friends, and you can actually become a greater, better person through tapping into strength you never knew you had.

Earlier, I compared PTSD to a demon. Sometimes, the demons rattle the cage you lock them in and you can fight back and keep them locked away. Sometimes, though, they get out and tear through your brain and you do stupid, dangerous, self-destructive things to make them go back in their cage….or at least lay down for a bit.

You can beat the demons. You can fight them and keep them locked in the cage. Eventually, if you get strong enough, you can even kill them.

But you have to be willing to take them on. The day you can do that is the day your life starts to change and you begin a hero’s journey back to the person you used to be. It’s not an easy fight, but it is one that may save your life. I know my PTSD will always be part of me (but not define me!) and every day is a battle of one type or another for myself.

“You can’t patch a wounded soul with a Band-Aid.” – The Black Echo, Michael Connelly

Peace.

Zz3GiVd2Brian Knowler is a 17 year member of the Ontario Provincial Police. During his time in policing, he has served in a wide variety of roles: media relations, school liaison, bike and all-terrain vehicle patrol, emergency management, recruiting, and incident command. He is a trained CISR team member and spent 5 years on the OPP Trauma Support Team before taking a leave in 2012.

Brian is also a fully licenced lawyer and a proud member of several professional law associations.

Recently, Brian took a step back in his policing duties to re-focus on his family and re-creating what PTSD has taken away from him. This has included a move, a change in responsibilities, and an emphasis on advocacy, writing, and reflecting on where his life and career has taken him.

He recently began to professionally speak and train about PTSD, resiliency, and post-traumatic growth.

Brian firmly believes that his family and natural healing methods have been the key to his recovery and success and that the journey through trauma can be one of rediscovery and rebuilding. PTSD needs to be dragged into the light, not hidden away in the shadows!

Follow Brian on Twitter and LinkedIn, and like the Healthy Heroes Project on Facebook.

Stigma Fighters: Natalie H.

I am honoured to have been recently asked by the international, non-profit organization Stigma Fighters to share my mental health story with them and their followers. The only requirement being that it be told in 1000 words or less…gulp…I’m always up for a challenge! I hope that by sharing my story with fellow mental illness sufferers and their families, I can inspire hope and courage, and fight the stigma of mental illness one word at a time.

My mental health symptoms started very young. I remember being in grade school telling my mom that I felt ‘weird’, and I would tear my room apart in anger and frustration when the only response I would get as to why I was having these feelings was, ‘it’s your hormones’. I felt lost and like an alien in my own body. Looking back now I can link these exact feelings to my adult depression and dissociation, but it took many long, painful, and very lonely years to even come close to understanding the emotions which made me feel like I didn’t belong on this planet.

I remember seeing doctors in my teen years, and they would prescribe an anti-depressant or two, but I never felt better, and I desperately craved intensive help. I knew in my heart that I wouldn’t find the answer to how to recover from my relentless sadness by reading a book, or seeing a doctor every once in a while. And because there seemed to be no further help available at that time, I carried on with life as a single mom and eventually a paramedic, wondering if my alien feelings were normal, and if they would ever go away.

I soon learned that by filling my time, I also filled my mind with thoughts other than my confusing mental health self-analysis. So over the years I’ve had various relationships (which always failed), went back to school and earned my degree, and became an advanced care paramedic. But if that weren’t enough, I also became a teacher for the paramedic college program and a peer educator. I was tired on a regular basis, and the feeling of exhaustion became my new normal. But no matter how hard I tried to keep busy, the roller-coaster of emotions and darkness I experienced would inevitably return, and I became quite hopeless that I would ever feel truly happy.

Then in May of 2012, I was a paramedic at a double-murder call at a hotel in my city. The details of the call are gruesome, and include satanic-cult rituals and the almost complete decapitation of two women by a man who also attempted to kill himself. That man, the murderer, was my patient. I did my best to block the call from my mind, but had endless difficulty coping with the fact that there was such evil in the world. I had lost all faith in humanity and began to drink alcohol quite heavily to numb the demons in my mind.

I carried on ‘existing’ for two more years until I had to go to trial as a main witness for the double-murder call. When I took the stand I did my best to not look at the man sitting behind a bullet-proof glass wall who had so often entered my dreams and turned them into nightmares. But at one point I had to make eye contact with him, and when I did, every painful, dark emotion I had stuffed away since May 2012 rushed back to me, and triggered the emergence of my post traumatic stress disorder.

The relentless pain of my PTSD and depression caused me to overdose twice, landed me in the mental health department of the hospital many times, and forced the Children’s Aid Society to restrict my contact with my son. I was completely broken! But luckily after I was hospitalized, I began daily classes in a partial hospitalization program and learned about so many amazing coping tools for my illnesses. I learned about things such as, cognitive behavioural therapy, meditation, positive self-talk, healthy boundaries, avoiding co-dependency, improving my spirituality and addiction education. It was the long-term education I had been craving for years! And as my journey progressed through this program, it was eventually appropriately renamed by a friend, ‘save my life school’.

Six weeks into school, and after a serious suicide attempt, I was finally accepted into the world renowned rehabilitation hospital Homewood, in Guelph, Ontario. During my stay there my personal relationship with the love of my life fell apart and I discovered that I was without a doubt an alcoholic. Through each excruciating day, I participated in intense group sessions for my PTSD, and went to 12-step meetings every day. I was very resistant to any help at first, as my hopelessness had hit an all time low, and I was physically and mentally exhausted. But after a near-tradgedy occurred at home with one of my children, I finally shook off my self-pity and dug in deep to heal my mind, heart and soul.

Once I truly decided to listen to the experts and follow their guidance, there was no turning back! I was on the road to recovery and it felt amazing! Slowly my family began to trust me again, and my relationship with my children became one filled with security and peace. I have been sober 10 months now and no longer have the obsession for alcohol. I have a sponsor and three 12-step home groups who support me and have taught me how important it is to my recovery to have a Higher Power in my life, and to rely on His guidance rather than my delusions.

Life is good! And I never thought that was possible! I finally look forward to waking up in the morning and living, not just existing. I have documented my recovery in a blog entitled: Paramedic Nat’s Mental Health Journey and have had the privilege of helping fight the stigma of mental illness all over the world with every post. I am not ashamed to speak about my experiences anymore, and can attest 100% to the healing power of talk. If you are suffering, you don’t have to do it alone. I know it may seem difficult, but recovery IS possible. But in order to GET help, you need to ASK for it.

Sending love to the souls we have lost to this fight, and to those who are battling everyday.

~Nat

Natalie HarrisNatalie Harris is a mom, an advanced care paramedic and teacher in Ontario, Canada. After being diagnosed with post traumatic stress disorder from a double-murder call, where the murderer was her patient, she began a vicious life or death battle with overdoses, alcoholism and suicide attempts. Luckily she was able to recover after many hospitalizations, including a 7-week admission to the rehabilitation hospital, Homewood, in Guelph, Ontario. She shares candid and raw experiences about her mental health illnesses and recovery in her blog paramedicnatsmentalhealthjourney.wordpress.com and has had the privilege of supporting, and providing recovery resources to mental illness sufferers all over the world.

Natalie can be found on her blog, Facebook and Twitter

It’s About Perspective by J.C. Hannigan (@jcahannigan)

“Humans see what they want to see.” – Rick Riordan

Perspective is a powerful thing. It can make and break your day. It can propel you to greatness, or it can keep you in darkness.

Depression, though…depression can twist perspective, depression can alter it. You could start your day out with every intention of having a great day, and then depression can come out of nowhere and swallow you whole. It changes the way you see things and even the way you taste things.

I used to be described as a positive, happy child. Always smiling. I can’t really remember the exact age I was when that started to change, when my smile became forced and fake, when I put on the mask, when my perspective…changed.

I still said the right things, the positive, brave things that everyone expected me to say, but I no longer believed them.

I battle with my perspective every single day. It’s an exhausting battle. Sometimes, I emerge victorious. Other days…I don’t. I lose the battle and my perspective stays as dark as the depression that clouds my mind.

I think the only thing that has helped me thus far has been my awareness about my mind, body, and spirit, my knowledge in the fact that depression lies and depression is to blame for altered perspectives and attitudes. I am able to function because I am aware.

But…I am only really able to function within myself.

Depression makes expressing your thoughts very, very difficult. Depression makes it feel like words are stuck in your throat. I can never explain myself eloquently through speech when my depression has settled upon me like a thick, dark, blanket.

So, I write. I write to release and find solace in the words that are otherwise lodged in my throat. I write to remind myself that the dark days will not last forever, and that I am strong enough to endure.

I write to see how depression has altered my perspective, because there is a power with writing. I can free my mind from the chains of depression, I can write my way through it. My words help me focus on the good, and that carries me through the dark.


 

b&w 1-70J.C. Hannigan is a married mother of two in her mid-twenties. J.C. is addicted to coffee, Instagram selfies, Cadbury Mini Eggs, and dill pickle chips (only not together, because that would be gross). She has been blogging for nearly 10 years, and won a Bloggie award some time ago. She writes new adult romance novels. She is the Content Manager for Stigma Fighters Canada.
Website: http://jchannigan.com
Blog: http://sarcastica.ca
Twitter: http://twitter.com/jcahannigan
Author Page: http://facebook.com/jcahannigan

Stigma Fighters: Jill

Living with mental illness is a day to day struggle. There are good days and bad days, but our illness is always there. People who understand or have experienced mental illness know that it is truly a disease that can be treated but not cured.

After years and years of struggling to find help and to discover how I personally could overcome and treat my illness, I have my anxiety and depression under control. It took me years of self-discovery and trying things that did not work and often made it worse, like using drugs as a coping mechanism, but with an amazing psychologist, strong support system, vitamins and exercise, I have learned to have the upper hand.

That being said, there will always be times when it is really difficult to have this upper hand. There are times when I really have to use every tool I have learned and have extreme self-control to overcome things and situations.

In my experience, the workplace was somewhere I spent most of my time and was also a place where my ability to stay in control of my mood and emotions was tested time and time again. Work for most of us is stressful for many reasons. With anxiety I have trouble with always worrying about what people think of me and if I am doing a good enough job. I would often go home at night and replay things I said to coworkers and customers, replay my behaviours, and worry if I did the right thing or if I could have done something better. Working in a team setting and in customer service is also hard because people can be very judgmental, mean and catty.

I recently worked somewhere where I was literally bullied and would have to deal with this on a daily basis. I was ignored, given dirty looks and even had some racist comments made towards me. I would go home angry and upset and mentally exhausted. I would be miserable and snap at people around me. I would have to go to the washroom and cry because of things they did or said, and one day, I was close to a panic attack. I had bad chest pains for weeks because of the anxiety I was feeling at work and when I wasn’t at work because I dreaded going in the next day. I was losing sleep because all I did was worry. If this situation had of happened to me years ago when I had no idea how to manage my symptoms, I would have literally crumbled.

I am much stronger now, and I knew of what symptoms to be aware of. This time, I was able to tell when I was on the brink of that panic attack and did a deep breathing technique to calm myself. I was also strong enough to know that nothing was more important than my health and that I deserved to be happy, healthy and stress free. So I made a difficult decision to leave that job with no job to fall back on. I was unemployed for two weeks and barely had any money, but my chest pain went away within days and I was happy again.

That was a very difficult and severe situation that I was able to escape and I have found a new job that I absolutely love, but my anxiety will always have an impact on my work. I will always worry more than the average person about my work being good enough, about what I say to people, about what the people I work with think about me.

When things upset me outside of work I struggle to keep it at home because I am an emotional person with anxiety, so I cannot just easily shut off negative thoughts or the constant worrying I have when a situation goes bad.

I am lucky enough to now work with people who support me and have my back, but not everyone is lucky enough to have an understanding workplace. Other people also have mental illnesses that affect them in the workplace even more than my anxiety and depression.

It is so important to be open and honest about your illness. I am not ashamed to admit that I struggle every day, to admit that I may need some help along the way because I have anxiety. Stress affects people with mental illness so much more than people realize. We cannot just “get over it” or “cheer up”. It can take a tremendous toll on us physically and mentally and sometimes we need 10 or 15 min to calm ourselves and do some breathing. Sometimes, we get to the point where we need a mental health day to relax. Workplaces and employers need to be more willing to learn about mental illness and to offer their employees the help and support they need.


11815965_10153123996682865_1553066778_nJill lives in Southern Ontario. She is a huge fan of the outdoors (when the weather is nice). She enjoys reading, watching movies, working out, and spending time with friends and family.

 

Stigma Fighters: Dallas McDonald

What is anxiety? It seems like I’ve been asked this question a million times in my life. How do you explain something to someone that you don’t fully understand yourself? I envy you people who ask me this question. I think you people are so lucky to not understand. I sincerely hope you never get the answer to this question.

You know that feeling when you almost fall backwards off of a chair? That split second of panic. That is what anxiety is. It is like falling backwards, all the time.

Think of the thing in this world you fear most, then imagine that thing is in the house with you. Always there. Always waiting.

Panic attacks, now that is when the real fun starts. Everyone has different varieties. Some people act out with aggression and anger. Some people it comes out in the form of hyper activity, and inability to form a clear thought. For me, everything stops, except my heart rate. My hands go numb, and then the closest way I could describe it, is like having my soul sucked out of my body through my feet.

I don’t remember the first time I really had anxiety, I think maybe I always had it. I didn’t have a troubled childhood. My parents are good people. I am well educated. I have made some less than favourable life choices in the past, but that was long after the anxiety had moved in for good.

There are millions of treatments out there thought to help or “cure” anxiety. Natural, chemical, illegal, legal…pick your poison. I have tried likely close to a million.

People are more than happy to tell you their ways of dealing with anxiety, exercise and good diet come up a lot. I’m happy for you people who a good run seems to fix everything, maybe I should buy a hamster wheel. Problem is sometimes I am too anxious to leave the house. The very thought of stepping foot inside of a gym makes me uncomfortable.

Medications, there are also a million. I have tried a few of these, some have made me a lot worse off for wear. Finding the proper treatment takes time, commitment and a lot of frustration. You’re anxiety is unique to you. It is a unique as you are, and just as much a part of you as your eye colour.

Here is the good news, anxiety does have its up-sides. We are known to have more empathy that most, we know what it is like to struggle with something, and that makes it easier for us to relate to others. At the very least, it gives us the drive to want to relate. We are sensitive, and caring. We are detailed.

I am learning all the time about how to deal with anxiety. I have learned that I am going to stop putting myself in situations that cause me anxiety. I have learned to surround myself with supportive people, and to forget the rest. I have learned to just work with the bad days instead of fight against them, if you need a day for you, take it. I have been an insomniac since I was a teenager, so I work a lot of evenings and nights. I work in social services with other’s who suffer from mental health issues, this gives my anxiety purpose.

Some of the most talented a creative minds in history have struggled with mental health. We are the artistic, the actors and comedians. We are mothers, fathers, daughters and sons. We are the stranger on the bus. We come from all walks of life. We are the 1 in 5. We are everywhere.

Bipolar Whispers: Where do I end and where does my bipolar disorder begin?

Where do I end and where does my bipolar disorder begin?

Being bipolar means I am a mixture of several different things at once. But doesn’t being a person without a mental illness mean the same thing? Where do we begin to know which aspects of ourselves are who we are or what aspects are the mental illness taking over? Where do I end and where does my bipolar disorder begin? Or my other diagnoses begin? Maybe there is a fine line between them.

Some things are obvious. I know anxiety is a part of my mental illness. I understand that once I feel the familiar squeeze of my heart, the butterflies fluttering, all trying to escape the cocoon at the same time, while my heart is skipping a beat and a weight is squarely on my chest. Even though in the moment I feel so bad, I know this is part of my mental illness and I know it will pass. Even if in the moment I feel so terrible.

I understand that when I go days and weeks with only sleeping 1-3 hours each night, that this is also a part of my mental illness. I also know that this lack of sleep will cause more problems for me and will change me for a while, but eventually with the help of prescribed medications I will get some sleep, maybe not what someone would call normal. But normal for me, for my circumstances. It always comes full circle with my illness, from no sleep, to normal sleep (normal for me) to sleeping too much and back around to no sleep, or very little sleep (maybe not in that order).

When the mania hits, it is surprisingly not always obvious in the beginning. Because I feel so good that I finally think I am doing wonderful. The cloud is finally lifted and I am no longer in that deep dark pit, struggling to breathe. Sometimes the mania comes after a nice long bout of stable balanced mood. I still do not realize I am beginning a manic episode right away. Usually, it will depend on the spiral up. How fast it is, how hard or bad it is. Or if either of my friends or family actually tell me that I am becoming manic or “getting sick/not well”.

The beginning of mania/hypomania feels good. Maybe some of you are shaking your heads ‘no’. But for me, yes. I love the beginning of mania. I am much more active, I have projects that I am researching or completing, I am writing more and more. I am cleaning and cannot sit still. And I am losing weight. I feel so great.

But that soon spirals out of control. Talking so much and so fast that people are asking me to repeat myself because they no longer understand what I am saying. Jumping from topic to topic, such randomness in my speech. Not able to sit still at all, even when lying in bed I am shaking my leg or tossing and turning, which frustrates my husband.

Paranoia over things that are just ridiculous when I am stable. Shakiness. Sleeping less and less until I am sleeping an hour or less a night, but I do not feel tired, and I feel like I do not need to sleep. After all if I am sleeping, I cannot write, or clean, or do things. Not to mention that my body feels like it actually does not need the sleep, I am not tired, I am actually wired.

But the control that I think I am exercising is not me controlling the mania, but instead the mania controlling me. I do what it tells me to do. I know this now, as I sit here writing. But in the beginning I feel in control. I feel like I am controlling the mania, that I am doing what I want to do, when I want to do it. I feel like I am in such a fantastic place when the mania begins. I feel like my heart, soul, mind are beginning to spread wings and fly.

But then, the mania controls me. It begins to dictate what I do, when I do it. It makes sleeping near impossible. It makes my speech hard to understand, it makes my mind jump all over the place. It dictates everything that I do. It pushes me further and further to the edge, further and further from the balance line that I once walked. And I can almost hear the mania laughing at me, watching me spiral more and more out of control, becoming dangerously close to being hospitalized again.

The depression, for me, is the absolute worst. I hate how I feel. I literally feel like I am drowning and all I want to do is crawl under some rock and not have to do or deal with anything. I feel tired, I feel heavy and I hate myself. I begin having thoughts of self injury, and I mentally degrade myself. I find it hard to get out of my own way to do anything. It begins getting worst and worst. With the depression, after 3-4 days I know its depression for sure, it is much more obvious to me than the mania is in the beginning.

I know this is because the depression makes me feel so bad and because the mania feels so good in the beginning days, even weeks.

But I am not sure I even answered my own question, “Where do I end and my bipolar disorder begin?”. Because you know what, it honestly does not matter to me.

It is all a part of who I am, a giant part. And that is okay.

Not all bad days are depression. Not all fantastic days are mania. Sometimes it’s just a bad day, and the next day will be fine. Sometimes a fantastic day, is just that…..fantastic.

Author’s Bio: 33 year old mother of three. Married to the love of her life. She’s a mental health blogger who suffers from bipolar disorder, PTSD, OCD, and anxiety.
Author’s Website: www.bipolarwhispers.wordpress.com
Author’s Twitter: @BipolarWhisper

Stigma Fighters: Pascale

It was sitting on the floor of my high school library during third period that I found myself asking, “Do crazy people know that they’re crazy?” Surely the answer was no, because I’d just been told that I was, in fact, crazy, and I didn’t feel any different than anyone else. I’d never thought of myself as crazy, never considered the possibility that I might one day sit in a doctor’s office, then a psychiatrist’s where I would be told that I had Bipolar II Disorder. And what do you expect when you tell a sixteen year old that they have a mental illness? With no prior education on the matter, I simply translated bipolar to crazy, a word that was much easier to understand, a word that was being constantly used to describe people like me. Staring down at the threadbare carpet, I never imagined that I could be something other than crazy; I couldn’t begin to realize that bipolar could mean so much more, that bipolar could mean amazing.

That night, after establishing that crazy people did not know that they were crazy, I sat on my bedroom floor with a glass of water in one hand, and a tiny white pill in the other. I don’t know which scared me more, the thought of being crazy, or the pill. At that point in time, and still today, I could not remember not having bipolar disorder. The disorder felt like it was a part of me, a monster that lived within me, that had grown with me, not one that had simply found me fourteen years down the road and hitched a ride. It felt like I’d been told that not everyone housed monsters, only a few did (I learned later that monsters live in one in four of us) and I was one of the abnormal ones. I’d thought that I was just like everyone else, but I’d been wrong. On the inside, I was so very different. They controlled their own thoughts and actions; the monster and I fought for control. They were normal; I had bipolar disorder. Everything I’d thought I’d known had been a lie.

And that’s why that tiny white pill scared me. That pill would make me normal again. That pill would quiet the monster, the one that I’d had with me forever. Did not having to wrestle with an opposing force feel different? Everyone else was normal, so normal couldn’t be that bad, but I didn’t know what it felt like. What if I didn’t like the change? They’d only told me that this pill, this antidepressant, would make me normal, but they didn’t tell me what normal was. They told me that I’d stop being sad, but I didn’t remember anything other than sad, so what if there was nothing else? What if not feeling sad meant not feeling? I didn’t want to lose my emotions. My last thoughts before closing my eyes were that if they were giving me a pill to fix me, then maybe not constantly fighting with my monster wasn’t so bad after all. After that, I put my future in my mouth, and swallowed.

The monster inside hated two things: the pills that I kept feeding it, and the fact that I told people about its existence. The monster fought the pills, and fought them hard. So hard, in fact, that it took almost a month before they started to work. After that month, the monster started to run out of energy; it let me regain control. What I didn’t have control over, however, was how others reacted to knowing that I harboured a monster. The people that I went to school with didn’t like hearing about the monster. The idea that the monster was real, could inhabit people like themselves, scared them almost as much as the pill had first scared me. It became very important for me to teach these people about mental health, to tell them that I had lived with a monster and that I had learned how to control it. I had to tell people that if they shared their mind with a monster, they weren’t alone, and they could subdue it, too. Most importantly, I felt like I had to teach my peers how to recognize these monsters, because they were crafty, and they knew how to hide; I had to show others how to look for signs of the abnormal within the normal.

I continued to resent the monster, because after knowing what it was like to feel like everyone else, I hated that I’d allowed it to control me for so long, to take so much away from me. Then, everything changed. I saved a life, and that changed everything. It took time for me to realize it, but I finally understood that without my own experiences, without my knowledge of monsters, of how they acted, what they looked like, I could never had found one in someone else. The monster inside of me, the one that was now under my control, harmless, had helped me, had helped someone else. I could never have done it if I hadn’t spent so much time with my own monster, learning about its habits, its thoughts and goals.

Today, we’re on better terms, my monster and I. I feed it the little white pills that I have come to know so well, and it lets me live my life. Occasionally, I draw on it to help me with tasks that I could only do without its help. The monster still helps me talk about what it’s like to live with a mental illness, still helps me see its brethren in others. Today, I know that a person is alive because of me, because of my experience with these monsters that are so common. I’ve stopped hating the monster and learned to live with it. It’s still there, lying dormant inside of me, and we sometimes come closer together than I would like, but the pills help to tame it. A lot of us are fighting with our monsters, it’s not an uncommon reality, and it may come as a shock, but every single one of us knows someone with a monster inside of them. It would be wonderful if we could get rid of our monsters entirely, but until science finds a way to free our minds and bodies from the control of these beasts, we must rely on external forces to help, and that’s okay. One in four Canadians will suffer from some sort of mental illness in their lifetime, and 100% of us know someone on some level who is battling a mental illness. It is time for us to recognize that mental illness is a reality, that it is a common one, and that we need to stop looking down on those who take antidepressants, because we all need a little help sometimes. Fighting monsters isn’t easy.

PascalePascale has been a part of many initiatives that help to change the face of mental health. She was one of the original members of The Sound Minds Project, a group of youth aiming to change the face of mental health.
She also spearheaded the LML (Love My Life) campaign supported by the Ontario Ministry of Health and Long Term Care. Pascale was one of 200 delegates chosen from across Canada to attend the first annual Unleash the Noise summit offered through The Jack Project. She was named Citizen of the Year in 2012 for her efforts to change the way young people view mental health. Recently, she appeared in Clara’s Big Ride (CTV) and was featured on The Marilyn Dennis Show. She is a 20 year old member of Alpha Gamma Delta, international women’s fraternity, student, and business owner who has struggled with bipolar disorder, depression, anxiety, and eating disorders. You can connect with Pascale on Facebook.

Bipolar Whispers

Trigger Response – Corresponding Memory

Trigger. A topic, word, phrase, item, picture, smell, taste or song that can create an emotional response in someone or cause them to relive an experience. Traumatic or otherwise.

We all have them.

Something that triggers a response in our brains to remember a corresponding memory. Sometimes these memories are positive, rewarding memories. Other times they are negative, sinister memories.

Some of these triggers may be weird. But that is the thing about triggers – you do not get to choose which ones affect you, or how they affect you. You cannot control the triggers, but sometimes the triggers can seem to control you.

I have good triggers. They are my ‘happy’ triggers. They make me feel warm and fuzzy. Loved.

My wedding song does this. I hear it on the radio. It might sometimes cause me to cry, but in a good way. I remember one of the happiest moments in my life. I drift back to the moment I was dancing with my husband. Our first dance as a married couple, with a shared last name.

I cut sandwiches and toast from top left corner to bottom right corner creating two ‘triangle like’ pieces. Sometimes without even thinking I cut my bread into squares. My Dad used to to this. These are the times I know he is with me, watching over me, protecting me. It always seems to happen on a particularly bad day. As if he is trying to remind me that I am not alone.

Then there are the other triggers, the ones that cause a negative response.

I have triggers that bring up very painful memories for me. They cause me to shake, sweat, feel nauseous, and have even caused me to cry. They make my skin crawl and my spine tingle.

Cabbage Patch dolls are one of my bad triggers. If I see them, even in a picture I literally shudder. I feel sick to my stomach, I start to shake, and my heart begins to beat faster.

The anxiety begins and my mind travels back to a memory stuck in time, like some black and white slide that someone stuck on repeat in the projector. I have tried to over come this, but I get the same emotional and physical response every time.

I have an extremely hard time when something in my own home triggers me. It makes me feel like I have no control in my personal space.

My suppose to be safe place. No longer safe. Instead, invaded by thoughts, memories and flashbacks of something my brain has long since tried to forget.

I have this one song that does this for me. I have the same trigger response as the Cabbage Patch dolls. Its one of those stupid one-hit-wonders. Sometimes I will be watching television and I hear it come on. It still makes my heart squeeze with anxiety, beating faster. Worry lines creasing my brow, tingles up my spine and skin crawling.

I hate that I let these little insignificant items become such a big significant, controlling part of my life. It bothers me that after all these years my body still continues to have a negative emotional and physical response to these triggers. A response that I have absolutely no control over.

I have other triggers, some good – some bad. The good triggers, I cherish. A warm, happy memory flooding my heart and memory. But the bad – they make me want to scream “Why can’t you just leave me alone. I was doing fine before you flooded my mind.”

Author’s Bio: 33 year old mother of three. Married to the love of her life. She’s a mental health blogger who suffers from bipolar disorder, PTSD, OCD, and anxiety.
Author’s Website: www.bipolarwhispers.wordpress.com
Author’s Twitter: @BipolarWhisper